The day went well from what I understand. His guides told me that a younger friend lost his shoe and Nico stopped to reassure the boy that he would help him. I always hope that the trials of treatment will result in increasing his capacity for compassion and kindness. So these stories are important to me.
Our experience at clinic is still . . . let’s say variable. I am frustrated. Sometimes I think it is a good idea to document the difficulty and aggravation inherent in our current healthcare system, but not today. The last clinic visit was miserable, but I sent a short email touching on just a few of the issues, and almost immediately got a phone call from our primary attending oncologist. We were on the phone a long time. We had not seen our primary other than passing in the hallway, so he was unaware of what transpired. He was so eager and sincere to make things right. I do not know that he can fix everything, but I genuinely believe he will try. I wonder how you fix problems that run across so many departments? I have to focus on getting my son through this process, but I would really love to know that we helped to improved things for the next kid.
Maryland is a really friendly state! We get the best customer service here and people are generally really friendly. Recently, we made Nico’s dreams come true and took him to Monster Truck Jam. I am attaching a picture from it. I was scratching my head as to how Jeff and I created a child obsessed with trucks until I saw Jeff’s face in these pictures.