Every time I try to update our page, something happens that pulls me away and then changes the entire course of what I was going to write. This morning we were told that Nico could go home after: platelet transfusion, red blood cell transfusion, chemotherapy and an echocardiogram. Cool! Except then Nico had a transfusion reaction after the platelets and started to go into anaphylaxis. Jeff, Nico’s nurse and I were in the room when it happened, but Jeff was the one that caught it. Jeff commented that Nico’s eyes were red and I replied he was just tired. Then Jeff said his ears were red and insisted we pull up Nico’s shirt. Under Nico’s shirt, hives were popping up before our eyes. Within 30 seconds, Nico’s eyes were swollen shut and covered in hives and he started coughing pretty violently. Our nurse took another patient’s Benadryl and hydrocortisone rather than wait for the pharmacy (thank goodness for her) and the doctors were in our room in less than two minutes. By that time, Nico's back was one giant hive with a tiny strip of pale skin running down the middle. Nico is doing better now but his eyes are still swollen. We just begged the physicians to let us out of here. We can come back for the rest. I am not sure how much more any of us can take, especially Nico. They still wanted him to get the echocardiogram, but when we tried to transport him he hit us, screamed bloody murder and attempted to hurl himself out of our arms. He won that one. This little boy has been through so much in four days, and he has rightfully said “enough.”
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