Nico will have to take additional chemotherapy by mouth at bedtime every night for the next two weeks and we will also be giving more chemotherapy via his port once a day over the next three days. The amount of chemotherapy is unbelievable really, especially when considering his age and size. But this is a result of his being “high-risk,” and we would rather treat him aggressively now and then be able to close this chapter for him once and for all. I say we will close the chapter for him and not for us because the reality is that once your child has gotten a diagnosis like this, you will never truly be able to relax again. It is just the reality of the situation. But we will do everything that we can to contain that fear so that it does not affect Nico.
After sitting in the pre-op waiting room today, I can confirm that leukemia is not the worst condition to have. Trust me. So for tonight, we will be grateful that our little guy is home, doing well, and has a treatable condition. There is a solution. There is a cure. There is a light at the end of this very long tunnel. It will not be easy, but we can do this and we will do this.
Thank you for all your love. I have posted pictures of some of the awesome people that wore their Team Nico shirts today in support. Thanks again.
PS – Thank you everyone the Valentine’s! We even found a Valentine’s from Danny Briere (of the Philadelphia Flyers) – an autographed hat and two photos with special messages for Nico. We are continually amazed by all the love and support. Thank you.