Guestbook

3/9/2013

Please feel free to sign our guestbook (just click the comment link below). We love hearing from you!

Jeff

3/9/2013 11:22:58 am

Sweetie - great job putting this all together. Now that you are writing your own code, you are even more of a nerd than I am. :o)

Adriana

3/11/2013 04:00:29 pm

Thank you for keeping us updated on Nico ...and you! Thinking of you!

AVIANA

3/15/2013 01:24:17 pm

love this site.....love you all

Maria

3/25/2013 08:44:47 am

You are all in my thoughts and prayers. You have so much courage and strength. It is absolutely amazing to me and what an amazing little guy. Thanks for sharing these. Sending lots of love!!!

Zac and Becky Hosler link

4/3/2013 05:04:45 am

Hi Nico, I hope you are having a good day today. We have been thinking about you a lot and we talk about how big and brave you are. My Noah says you are a soldier like him. I think you are a super hero and way more brave than I ever was when I was a kid (I'm old now!!).

We just wanted to tell you we are thinking about you

Tell your daddy and mommy hi for us

-uncle zac, auntie becky, noah and isaac
(here in hawaii your daddy and mommy's friends are always called uncle and auntie :)

Connie

4/9/2013 12:57:25 pm

Hello - I am reading your story with interest....and really feeling for you. One day you wrote about this being a day by day thing....and exactly that is how it was for us too. At the beginning it was sometimes an hour by hour thing. The other point I related to was your description of Nico on the steroids. My daughter Sophie was 14 months at diagnosis and steroids - throughout treatment were very hard for her. She had major major tantrums...scary ones where I wouldn't know if I could help her stop. Insomnia, and occasional banging her head on cupboards. It was awful - I asked the oncologist many times wasn't there something we could give her to help ease through this - they just kept saying no. Now, years later - I don't really believe that - I think there are some drugs they can give to counteract some of the horrible feelings our kids have on steroids. So - don't hesitate to ask. I also looking back believe now after all I have learned from other parents - that Sophie was probably having pain and nausea off and on and I never knew it as she was too little to know and/or tell me. this I feel bad about. She is now almost 7 years out from diagnosis and so almost 5 years off treatment - at which point she is truly considered cured. So - this is great - no return for us. This is the high point absolutely. I won't though pretend there aren't some lasting affects - Sophie struggles with some social.emotional development and some impacts on her executive functioning/ability to manage her own frustration. We are managing - but I just read your story so far about Nico and wanted to wish you all the best.....on the next steps of the journey. Bye for now, Connie

lucy

5/31/2013 03:30:22 am

I continue to keep Nico and both you and Jeff in prayer as you go through this. I have been reading the updates and is always glad to hear of each and every hurdle that is overcome. It is my prayer that this continues throughout the rest of the treatment. I am touched by the overwhelming support that you have received from family friends and strangers. God Bless

Teresa

6/6/2013 02:51:50 am

Jeff,

I just learned of Nico's illness this morning, otherwise I would have made donation and contacted you sooner.

I think of you so very often and have kept my words to keep you and your family in my daily meditations and prayers.

Happy to hear that you are working. Please keep in touch.

Teresa

Joanne link

9/30/2013 02:57:00 pm

We have a Nico too! He turned 2 on March 12th and was diagnosed with pre-B ALL on April 2nd. I'd love to "meet" you and keep each other in our prayers and. We love Team Nico!

Shannon

10/7/2013 02:32:21 am

I just looked at your website, and we have a lot of strange similarities. We even look a little bit alike! My email is shannonjsnow@gmail.com.

Phyllis

1/6/2014 05:12:21 am

Shannon, Jeff, and Nico. I just finished your post from January 2, 2014. Shannon, you should be a writer. I was captivated from the beginning. What a year!!! And the thing is you did make it through!!! I wonder how things are going with your move east. Love ya, Aunt Philly

Tiffany Serfustini

3/5/2014 11:19:41 pm

Thank you for continuing to post both here and on CareBridge. Hearing about Nico's progress and both your triumphs and fustrations keep your family close to our minds and hearts. Our thoughts and prayers are with you. Tiffany Serfustini

Roger Team Evolution

6/24/2014 12:50:58 am

Nico,

We want to say thanks to you for showing our girls what it is to keep on fighting.

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