So we have restarted the chemo, but at only 50%. We have also taken a semi-permanent hiatus from the prophylactic antibiotic that he was on to prevent PCP pneumonia. He will get an alternative antibiotic IV once a month (hooray, more time in the clinic!). Oh well, I guess I am resigned now.
When I realized Nico’s platelets fell, I immediately emailed the fellow and our attending oncologist. We were only going to clinic that day to double check blood work, and were not scheduled to see our attending. But after getting my email, he came to clinic (on a day that he is not there at all). You would never know this doctor is a Who’s Who. He is so humble and compassionate. He never seems in a hurry and has already spent a lot of time reassuring me. Probably the most reassuring thing that he said was that our start of maintenance has been really bad. I am so glad that this is not typical because it gives me hope that it will improve.
So for now, we are exhaling and excited for cold and flu season to pass.