Nico and I have a tradition. Whenever we get released (yes, like a prison sentence) from the hospital, we listen, sing and dance to a specific song. Eventually I will attach the audio file, but for now here are a few of the lyrics:
Birds flying high, you know how I feel
Sun in the sky, you know how I feel
Breeze drifting on by, you know how I feel
It’s a new dawn
It’s a new day
It’s a new life for me, and I’m feeling good!
I will give you another verse after we clear the next hurdle. Wow, Interim Maintenance was rough, but we ended strong. Every admission has a variety of bumps, but it is getting easier. It is not easier because the bumps are less sucky, but because I think we have perfected raising hell: we know what nurses are knowledgeable and skilled, we know where to lodge complaints, we are confidant in our own knowledge of Nico and his protocol, and we know 100% that his primary oncologist and nurse practitioner have our backs. So, we did this. We got through it!
Physically this series was hard on Nico’s body. After each dose of Methotrexate, our boy has developed blisters and sores from his throat to his bottom, and requires a lot of oxycodone just to drink water. But like Jeff said, these trials do not stop him in the least. He is still Nico, doing what Nico does. We have Delayed Intensification next. This is supposed to be the worst of the worst, but once we are through, we are out of front-line treatment! Nico’s world can resume some normalcy at that point (fingers crossed). We start DI July 19th and it should run approximately eight weeks. So we’re gearing up.
Thank you for all the love and support.
P.S. If you would like to see a 15 second clip of Nico doing his I’m-out-of-the-hospital dance, I posted one directly after this update.
Birds flying high, you know how I feel
Sun in the sky, you know how I feel
Breeze drifting on by, you know how I feel
It’s a new dawn
It’s a new day
It’s a new life for me, and I’m feeling good!
I will give you another verse after we clear the next hurdle. Wow, Interim Maintenance was rough, but we ended strong. Every admission has a variety of bumps, but it is getting easier. It is not easier because the bumps are less sucky, but because I think we have perfected raising hell: we know what nurses are knowledgeable and skilled, we know where to lodge complaints, we are confidant in our own knowledge of Nico and his protocol, and we know 100% that his primary oncologist and nurse practitioner have our backs. So, we did this. We got through it!
Physically this series was hard on Nico’s body. After each dose of Methotrexate, our boy has developed blisters and sores from his throat to his bottom, and requires a lot of oxycodone just to drink water. But like Jeff said, these trials do not stop him in the least. He is still Nico, doing what Nico does. We have Delayed Intensification next. This is supposed to be the worst of the worst, but once we are through, we are out of front-line treatment! Nico’s world can resume some normalcy at that point (fingers crossed). We start DI July 19th and it should run approximately eight weeks. So we’re gearing up.
Thank you for all the love and support.
P.S. If you would like to see a 15 second clip of Nico doing his I’m-out-of-the-hospital dance, I posted one directly after this update.
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