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TEAM NICO

Our son, Nico, was diagnosed with HR pre-B ALL (acute lymphoblastic leukemia) on January 2, 2013. This is a record of Nico's progress.

WELLNESS WARRIORS

Keep On Truckin'

9/7/2013

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I suppose I should update though there is not a lot to say regarding Nico’s treatment. We are in the thick of the worst phase. Nico is neutropenic, but as always, he is holding his own. He is playing and laughing and carrying on, but he does have a lot of intermittent pain in his legs. I am told this is normal for this phase of treatment. I am also told that all of his blood counts will drop dramatically starting this week and to expect that he will need a blood transfusion soon. Once we are through this, I have vowed to give blood and sign up for the bone marrow registry. I feel obligated since we benefited so much from blood donors.

On other fronts, Jeff was laid-off again. I am not going to say that we are taking it in stride, but the blow is less of a blow after the year that we have had. Someone in my Mom’s Group said bad things happen in threes; if that is true we should be primed for good things now. But I also read an article recently that argued that people that believe in bad luck have a lot more of it. So I chose not to believe in bad luck. I do believe in coincidence though and this year has had a cluster of things we would have taken a pass on. All we can do is try to learn something for all of this. Our friend Greg always says: if money can fix it, it’s not a problem. I guess we will learn to practice that theory. We continue to try to be positive and hopeful. Jeff is a brilliant man and a very hard worker, and something much better will come his way. I am sure of it.

One last thing, the CureSearch walk (fundraiser for childhood cancer research) is happening in Salt Lake City on October 5th, and Team Nico plans to make an appearance. CureSearch is one of the largest contributors to the clinical trials that have so greatly benefitted Nico. If you can walk, we would love to have you on our team. If you can give, we would love that too. There is a tab on our WarriorNico.com page that includes a link to our CureSearch site.

Thank you for all the love, support and concern.

1 Comment
Jianwei Sun
9/10/2013 07:45:18 pm

I am sure this is the final bad thing happening to your family. I hope Nico can sail through this final phase and Jeff will find a job he enjoys. Thanks for keep us all updated.

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